INTERVENTIONS TO REDUCE PARENTAL BURDEN IN CAREGIVERS OF CHILDREN WITH NEURODEVELOPMENTAL DISORDERS: SYSTEMATIC REVIEW

Authors

  • Maycom Carvalho da Silva Author
  • Luisa Martins Falcão de Souza Author
  • Mayra Herminia Simões Hamad Farias do Couto Author
  • Claudia Jeane Claudino de Pontes Miranda Author
  • Simone Souza da Costa Silva Author
  • João Edivaldo da Silva Lobato Author
  • Manoel Samuel da Cruz Neto Author
  • Jully Greyce Freitas de Paula Author
  • Suellen Oliveira da Silva Miranda Author

DOI:

https://doi.org/10.56238/arev7n11-098

Keywords:

Caregiver Burden, Parental Stress, Children With Disabilities, Neurodevelopmental Disorders

Abstract

The care of children with neurodevelopmental disorders imposes challenges that often result in physical and emotional overload on caregivers. This study aimed to identify interventions focused on reducing parental burden among caregivers of children with neurodevelopmental disorders. It is a systematic literature review conducted in the PubMed, SciELO, LILACS, and PEDro databases, including randomized clinical trials published between 2021 and 2025. The methodological quality of the articles was assessed using the PEDro Scale, and the results were synthesized descriptively. The studies demonstrated reductions in stress, anxiety, and depression levels, as well as improvements in caregivers’ self-efficacy and quality of life. It is concluded that the interventions proved effective in mitigating parental burden and reinforce the need for greater multidisciplinary involvement in developing caregiver support strategies.

Downloads

Download data is not yet available.

References

AMERICAN PSYCHIATRIC ASSOCIATION. Diagnostic and Statistical Manual of Mental Disorders (DSM-5-TR). 5ª ed. Text Revision. Washington, D.C.: American Psychiatric Publishing, 2022. DOI: https://doi.org/10.1176/appi.books.9780890425787

ASIGE, R.; MUGABA, M.; MUGISHA, J.; et al. Impact of the Akwenda Intervention Program for cerebral palsy on caregiver-perceived burden, stress, and psychosocial functioning: A cluster-randomized trial in Uganda. BMC Pediatrics, v. 25, n. 72, 2025. DOI: 10.1186/s12887-025-05115-7.

BÜYÜK, DAMLA ŞAHIN; ÖZMEN, DILEK. Effectiveness of a Parent Empowerment Program for Parents of Children with Autism: A Randomized Controlled Trial. Child: Care, Health and Development, v. 51, e70148, 2025. DOI: 10.1111/cch.70148. DOI: https://doi.org/10.1111/cch.70148

CUNHA, K. C.; CALDAS, I. F. R.; PONTES, F. A. R.; RAMOS, E. M. L. S.; SOUZA, P. B. M.; SILVA, S. S. C. Qualidade da coparentalidade e o estresse em pais de crianças com paralisia cerebral. Belém: Universidade Federal do Pará, 2021. DOI: https://doi.org/10.1590/1980-54702021v27e0010

HE, L.; LIU, X.; YANG, M.; et al. Effects of Mozart–Orff parent–child music therapy among mothers and their preschool children with autism spectrum disorder: A mixed-methods randomized controlled trial. Frontiers in Psychology, v. 15, 2024. DOI: 10.3389/fpsyg.2024.1205482. DOI: https://doi.org/10.1186/s12887-024-05085-3

LEÓN, E. Servicio de Salud Mental. H.I.A.E.P. Sor María Ludovica. La Plata, 2022.

LEVATO, L.; MULICK, J.; WILCZYNSKI, S.; et al. Parent outcomes from a randomized controlled trial investigating a modular behavioral intervention for young autistic children. Journal of Autism and Developmental Disorders, v. 55, 2025. DOI: 10.1007/s10803-024-06250-2. DOI: https://doi.org/10.1002/aur.70013

LIMA, M. B. S.; RAMOS, E. M. L. S.; PONTES, F. A. R.; SILVA, S. S. C. Cerebral Palsy: Parental Stress of Caregivers. Belém: Universidade Federal do Pará, 2021.

MAHER, C. G.; SHERRINGTON, C.; HERBERT, R. D.; MOSELEY, A. M.; ELKINS, M. Reliability of the PEDro scale for rating quality of randomized controlled trials. Physical Therapy, v. 83, n. 8, p. 713–721, 2003. DOI: https://doi.org/10.1093/ptj/83.8.713

MOSELEY, A. M.; et al. Tradução e adaptação da escala PEDro para o português (Brasil): versão brasileira da Physiotherapy Evidence Database Scale. Brazilian Journal of Physical Therapy, v. 24, n. 5, p. 399–405, 2020.

NI, Li Si; TONG, Chien Wai; STANLEY, Lam Kam Ki. Effects of an acceptance and commitment-based parenting program for parents of children with autism spectrum disorder on parenting stress and other parent and children health outcomes: a pilot randomized controlled trial. Autism, v. 29, n. 6, p. 1524–1539, 2025. DOI: 10.1177/13623613241311323. DOI: https://doi.org/10.1177/13623613241311323

NIÑO-SERNA, L. F.; MEYER-MARTÍNEZ, W. S.; TIRADO-OTÁLVARO, A. F.; MARTÍNEZ-PÉREZ, D. C.; YEPES-DELGADO, C. E. Significado de cuidar niños con parálisis cerebral. Revista Latinoamericana de Ciencias Sociales, Niñez y Juventud, v. 22, n. 1, p. 1–21, 2024. DOI: https://doi.org/10.11600/rlcsnj.22.1.6297

PAGE, M. J. et al. The PRISMA 2020 statement: an updated guideline for reporting systematic reviews. BMJ, v. 372, n. 71, p. 1–9, 2021.

PERICHE, A. K. W.; PANTOJA, S. L. R. Estrés en padres de niños con diagnóstico de trastorno del espectro autista en una institución privada, Lima–Perú. Lima: Universidad Peruana Cayetano Heredia, 2024.

PRISMA STATEMENT. PRISMA 2020 flow diagram. Available at: https://www.prisma-statement.org/prisma-2020-flow-diagram. Accessed on: 20 Oct. 2025.

REIS, G. F. dos; RODRIGUES, L. Narrativas de mães de crianças autistas sobre possibilidades e desafios do cuidado. Belém: Universidade da Amazônia, 2024. DOI: https://doi.org/10.1590/s0103-7331202434097pt

ROJAS-TORRES, Liliana Paulina; ALONSO-ESTEBAN, Yurena; ALCANTUD-MARÍN, Francisco. Mindfulness parenting and childish play: a clinical trial with parents of children with autism spectrum disorders. Psicothema, Oviedo, v. 35, n. 3, p. 259-270, 2023. DOI: https://doi.org/10.7334/psicothema2022.339 DOI: https://doi.org/10.7334/psicothema2022.339

SHARIFIAN, N.; AZIZI, R.; GHORBANI, M. Effect of resilience training on stress, hope and psychological toughness of mothers living with mentally and physically disabled children. Journal of Education and Health Promotion, v. 13, n. 3, p. 150–159, 2024. DOI: 10.4103/jehp.jehp_1683_23. DOI: https://doi.org/10.21203/rs.3.rs-3133431/v1

SIMELANE, A. P. Understanding daily parenting stresses in caring for children with autism spectrum disorders. South African Journal of Child Health, v. 14, n. 3, p. 146–150, 2020. DOI: 10.7196/sajch.2020.v14i3.1596. DOI: https://doi.org/10.7196/SAJCH.2020.v14i3.1596

WORLD HEALTH ORGANIZATION. International Classification of Diseases for Mortality and Morbidity Statistics (11th Revision – ICD-11, 2024 Release). Geneva: World Health Organization, 2024. Disponível em: https://icd.who.int/en. Acesso em: 20 out. 2025.

ZHAO, M. et al. Effects of a web-based parent–child physical activity program on mental health in parents of children with ASD. International Journal of Environmental Research and Public Health, v. 18, n. 24, p. 12913, 2021. DOI: https://doi.org/10.3390/ijerph182412913 DOI: https://doi.org/10.3390/ijerph182412913

Published

2025-11-11

Issue

Section

Articles

How to Cite

DA SILVA, Maycom Carvalho; DE SOUZA, Luisa Martins Falcão; DO COUTO, Mayra Herminia Simões Hamad Farias; MIRANDA, Claudia Jeane Claudino de Pontes; SILVA, Simone Souza da Costa; LOBATO, João Edivaldo da Silva; DA CRUZ NETO, Manoel Samuel; DE PAULA, Jully Greyce Freitas; MIRANDA, Suellen Oliveira da Silva. INTERVENTIONS TO REDUCE PARENTAL BURDEN IN CAREGIVERS OF CHILDREN WITH NEURODEVELOPMENTAL DISORDERS: SYSTEMATIC REVIEW . ARACÊ , [S. l.], v. 7, n. 11, 2025. DOI: 10.56238/arev7n11-098. Disponível em: https://periodicos.newsciencepubl.com/arace/article/view/9842. Acesso em: 27 jan. 2026.